Bones Channel
Topics & Medications
Related Channels

Children With Osteogenesis Imperfecta

Common sense is the best guide when handling children with osteogenesis imperfecta. Remember that the bones are fragile and can break with little or no pressure. Be especially careful of the long bones in the body (i.e., of the arms, legs, and ribs). You should not lift your baby under the armpits or pull on his or her arms or legs.
When you change diapers, lift the baby by the buttocks and not by the ankles, as is customarily done. Spread your fingers apart as far as possible, and put your hand under the buttocks, with your forearm under the baby's legs to prevent them from dangling. To lift the baby onto your shoulder, or to carry the baby, use the same technique, but with one hand behind the head and the other behind the buttocks, again with fingers spread as far as possible.
When lifting or moving your child, be careful that little fingers and toes do not get caught on clothing you are wearing, such as shirts or blouses that button down the front. Many parents find it helpful to insert a piece of egg crate foam rubber or a thick piece of foam rubber into a pillowcase and use this to transport the baby. Some parents use a pillow. This type of support can also be used as a base when holding the baby.
It is usually best to avoid lifting or moving a child with a painful fracture as much as possible. After some degree of healing occurs, the fracture will be less painful and moving your child will be easier. Unfortunately, leaving your child in one position for a long time can cause skin rashes and sores.
Putting a child in different positions not only prevents these problems, but also helps the child develop different sets of muscles, which is important for later mobility. Some parents have found the following method for shifting a baby from their stomach to their back, or vice versa, to be useful when conventional methods cause discomfort.
This procedure is best accomplished by two people:


  • Position the baby on his or her back on a pillow or a covered piece of foam rubber.
  • Turn the baby's head to one side. Then place a second pillow or piece of foam on top of the baby, sandwiching the child.
  • With one person at the baby's head and the other person at the feet, each person places one hand under the bottom pillow and the other hand on top of the upper pillow. At the count of three, the child is flipped onto his or her stomach.
  • Be sure both participants agree beforehand on the direction that the baby will be turned.
This method, although a little awkward, provides you with a way to change the baby's position without causing unnecessary discomfort.
When lifting a child with osteogenesis imperfecta, remember to use good body mechanics to prevent back injury to yourself. Always have the child as close to you as possible before beginning to lift. Flex your knees slightly, and lift with the legs instead of the back.
Do not be afraid to show affection to your child by cuddling, rocking, touching, and talking to him or her. Frequent stimulation is necessary for appropriate emotional and social development.
A Dose of Reassurance for Parents of Picky Eaters

Facts About Osteogenesis Imperfecta

Terms of Use
Advertise with Us
Contact Us
About eMedTV
Privacy Policy
Copyright © 2006-2019 Clinaero, Inc.
eMedTV serves only as an informational resource. This site does not dispense medical advice or advice of any kind. Site users seeking medical advice about their specific situation should consult with their own physician. Click Terms of Use for more information.