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Coping With Osteogenesis Imperfecta

Health Insurance and Osteogenesis Imperfecta

It would be wise to evaluate your health insurance coverage. Osteogenesis imperfecta can become very expensive, and the financial strain can often become as burdensome to a family as the health problems. There are many organizations and clinics that help with some of the costs associated with birth defects. One organization is the Shriners Hospitals for Children, which provides free medical services to those who qualify. Medical services vary greatly from state to state; check with your local and state governments to determine what is available in your area.
 

Perceptions of Coping With Osteogenesis Imperfecta

Because awareness about child abuse is rising, it is not uncommon for parents of children with osteogenesis imperfecta to be mistakenly suspected of this crime. When you find it necessary to seek medical help away from your regular doctor, be prepared to answer questions about your child's condition calmly and with understanding. A physician's primary concern is usually the overall welfare of the child, and knowledge of osteogenesis imperfecta is not as widespread as we all would like it to be. It is a good idea to carry a letter from your doctor with you at all times, stating that your child has a diagnosis of osteogenesis imperfecta and explaining what that means. Many parents also carry a copy of this letter in the glove compartment of the car. When you travel, carrying copies of your child's medical records can alleviate many potential problems.
 

Summary of Coping With Osteogenesis Imperfecta

At first, the thought of coping with the problems of parenting a child with a disability may seem overwhelming. Plan to take one day at a time. Get used to your new infant. He or she loves you and wants love in return. Rock, hold, and sing to your child. Think of your child as a brand new individual who will blossom and grow, much to your delight as parents. In many ways, parenting a child with a disability like osteogenesis imperfecta can be rewarding and exhilarating in ways that a new parent would never expect.
 
Remember that you are not alone. Many other parents have faced situations similar to what you are facing now.
 
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Living With Osteogenesis Imperfecta

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