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Osteogenesis Imperfecta Treatment

Osteogenesis imperfecta treatment is typically focused on preventing or controlling symptoms, maximizing independent mobility, and developing optimal bone mass and muscle strength. There is currently no cure for this disorder, but regular exercise, surgery, and physical therapy have all been shown to help. People with osteogenesis imperfecta also benefit from maintaining a healthy weight and diet, as well as avoiding cigarettes and excessive alcohol and caffeine consumption.

An Introduction to Osteogenesis Imperfecta Treatment

There is no cure for osteogenesis imperfecta (OI) yet. Therefore, treatment of this disorder is directed towards:
  • Preventing or controlling the symptoms of osteogenesis imperfecta
  • Maximizing independent mobility
  • Developing optimal bone mass and muscle strength.
Care of fractures, extensive surgical and dental procedures, and physical therapy are often recommended for people with OI. Use of wheelchairs, braces, and other mobility aids is common, particularly (although not exclusively) among people with more severe types of osteogenesis imperfecta.
To date, no drug or vitamin therapy regimen has been effective as a treatment for this disorder. Research scientists continue to make progress with these issues.
Surgery as Osteogenesis Imperfecta Treatment
A surgical procedure called "rodding" is frequently considered for individuals with OI. This osteogenesis treatment involves inserting metal rods through the length of the long bones to strengthen them and prevent or correct deformities.
This treatment is most commonly done in the legs and the arms as needed. Rodding not only corrects bowing (curving) of the bone, but also adds an internal support that helps to prevent further fractures. The age of the child on which this operation is performed depends greatly on the size of the bones, but it is frequently done on children as young as two or three years old.
When considering this option for your child, be sure to discuss the pros and cons of telescoping and nontelescoping rods with your orthopedic surgeon. Also, keep in mind that this is a treatment that must be repeated as the child outgrows the rods.
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